{"id":33300,"date":"2016-04-07T15:45:54","date_gmt":"2016-04-07T20:45:54","guid":{"rendered":"http:\/\/deafnetwork.com\/wordpress\/?p=33300"},"modified":"2016-04-07T15:45:54","modified_gmt":"2016-04-07T20:45:54","slug":"nih-study-seeks-to-improve-quality-of-life-measure-for-dhh-people","status":"publish","type":"post","link":"https:\/\/deafnetwork.com\/wordpress\/blog\/2016\/04\/07\/nih-study-seeks-to-improve-quality-of-life-measure-for-dhh-people\/","title":{"rendered":"NIH study seeks to improve quality-of-life measure for D\/HH people"},"content":{"rendered":"

NIH study seeks to improve quality-of-life measure for deaf and hard-of-hearing people<\/strong><\/p>\n

Release Date: March 28, 2016
\nContact: Susan Gawlowicz
\n585-475-5061 \/ smguns@rit.edu<\/p>\n

NIH study seeks to improve quality-of-life measure for deaf and hard-of-hearing people
\nRIT leads $1.6 million study to enhance disability and outcomes research<\/p>\n

Improving the health of the deaf and hard-of-hearing population through accessible patient-reported outcome measures is the goal of a $1.6 million National Institutes of Health-funded study, led by Rochester Institute of Technology.<\/p>\n

Researchers and providers will, for the first time, have a tool for assessing their deaf and hard-of-hearing patients\u2019 health-related quality-of-life outcomes in American Sign Language. Resulting data will lend new insights in patient outcomes research and improve prevention and treatment models for the underserved deaf and hard-of-hearing population, said Poorna Kushalnagar, a health psychologist and research associate professor in RIT\u2019s Chester F. Carlson Center for Imaging Science.<\/p>\n

Patient assessments evaluate symptoms, well-being and life satisfaction, as well as physical, mental and social health. Surveys designed for English speakers present a language barrier for many users of American Sign Language and accessible services, Kushalnagar said.<\/p>\n

She and her colleagues at Northwestern University, University of Arkansas Little Rock and Gallaudet University have developed a new profile based on the standard Patient Reported Outcome Measurement Information System, or PROMIS, used in clinical outcomes research. The team modified the PROMIS domains to reflect the experiences of deaf and hard-of-hearing people in English and ASL. The resulting PROMIS-Deaf profile has undergone rigorous cognitive testing with deaf and hard-of-hearing adults and is being used to gather data from a nationwide sample.<\/p>\n

http:\/\/deafhealthqol.cis.rit.edu\/?action=promis-deaf<\/a><\/p>\n

A large sample of 650 participants will allow researchers to analyze data from several subgroups within the deaf and hard-of-hearing population, such as by hearing-level, language, gender, ethnicity, race and identification with the lesbian, gay, bisexual, transgender and gay community.<\/p>\n

\u201cThis project will yield the largest, most representative quality-of-life data set on deaf and hard-of-hearing adults with early deafness,\u201d said Kushalnagar, director of the Deaf Health and Communication and Quality of Life Center in RIT\u2019s Center for Imaging Science.<\/p>\n

http:\/\/deafhealthqol.cis.rit.edu\/<\/a><\/p>\n

The NIH grant and supplemental research funding supports three undergraduate researchers and a post-baccalaureate diversity fellow at RIT, as well as a graduate assistant researcher at the University of Arkansas Little Rock.<\/p>\n

Kushalnagar\u2019s team includes David Cella, chair and professor of medical social science in the Feinberg School of Medicine at Northwestern University, and Samuel Atcherson, associate professor of audiology at the University of Arkansas Little Rock.<\/p>\n

###<\/p>\n

Rochester Institute of Technology is home to leading creators, entrepreneurs, innovators and researchers. Founded in 1829, RIT enrolls 18,600 students in more than 200 career-oriented and professional programs, making it among the largest private universities in the U.S.<\/p>\n

The university is internationally recognized and ranked for academic leadership in business, computing, engineering, imaging science, liberal arts, sustainability, and fine and applied arts. RIT also offers unparalleled support services for deaf and hard-of-hearing students. The cooperative education program is one of the oldest and largest in the nation. Global partnerships include campuses in Croatia, Dubai and Kosovo.<\/p>\n

For news, photos and videos, go to http:\/\/www.rit.edu\/news<\/a>.<\/p>\n

SOURCE:<\/p>\n

http:\/\/www.rit.edu\/news\/story.php?id=55069<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

NIH study seeks to improve quality-of-life measure for deaf and hard-of-hearing people Release Date: March 28, 2016 Contact: Susan Gawlowicz 585-475-5061 \/ smguns@rit.edu NIH study seeks to improve quality-of-life measure for deaf and hard-of-hearing people RIT leads $1.6 million study…<\/p>\n

Read more →<\/a><\/p>\n","protected":false},"author":6,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_crdt_document":"","advanced_seo_description":"","jetpack_seo_html_title":"","jetpack_seo_noindex":false,"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[2],"tags":[1629,23,24833,24,898,1412,19024,24835,416,158,24837,415,1660,24834,24836],"class_list":["post-33300","post","type-post","status-publish","format-standard","hentry","category-deaf-news","tag-american-sign-language","tag-asl","tag-chester-f-carlson-center-for-imaging-science","tag-deaf","tag-gallaudet-university","tag-hard-of-hearing","tag-national-institutes-of-health","tag-northwestern-university","tag-ntid","tag-poorna-kushalnagar","tag-promis","tag-rit","tag-rochester-institute-of-technology","tag-susan-gawlowicz","tag-university-of-arkansas-little-rock"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_likes_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p752R-8F6","jetpack-related-posts":[{"id":27683,"url":"https:\/\/deafnetwork.com\/wordpress\/blog\/2014\/06\/09\/website-launched-to-help-dhh-students-earn-graduate-degrees\/","url_meta":{"origin":33300,"position":0},"title":"Website launched to help D\/HH students earn graduate degrees","author":"Grant Laird Jr","date":"June 9, 2014","format":false,"excerpt":"Website launched to help D\/HH students earn graduate degrees Release Date: June 6, 2014 Contact: Greg Livadas 585-475-6217 or Greg.Livadas@rit.edu Website launched for program that helps deaf and hard-of-hearing students earn graduate degrees Rochester Bridges to the Doctorate program has students in RIT\/NTID and UR programs A website is now\u2026","rel":"","context":"In "General"","block_context":{"text":"General","link":"https:\/\/deafnetwork.com\/wordpress\/blog\/category\/deaf-news\/"},"img":{"alt_text":"","src":"","width":0,"height":0},"classes":[]},{"id":27482,"url":"https:\/\/deafnetwork.com\/wordpress\/blog\/2014\/05\/22\/nih-grant-supports-nmsu-research-aimed-at-improving-education-for-deaf-students\/","url_meta":{"origin":33300,"position":1},"title":"NIH grant supports NMSU research aimed at improving education for deaf students","author":"Grant Laird Jr","date":"May 22, 2014","format":false,"excerpt":"NIH grant supports NMSU research aimed at improving education for deaf students Julie M. Hughes juhughes@nmsu.edu May 18, 2014 LAS CRUCES >> New Mexico State University's Communication Disorders Program is partnering on a $2.3 million research project to pinpoint the types of teaching and services that will help deaf students\u2026","rel":"","context":"In "General"","block_context":{"text":"General","link":"https:\/\/deafnetwork.com\/wordpress\/blog\/category\/deaf-news\/"},"img":{"alt_text":"","src":"","width":0,"height":0},"classes":[]},{"id":18642,"url":"https:\/\/deafnetwork.com\/wordpress\/blog\/2012\/05\/04\/grant-to-improve-problem-solving-skills-for-dhh\/","url_meta":{"origin":33300,"position":2},"title":"Grant to Improve Problem-Solving Skills for D\/HH","author":"Grant Laird Jr","date":"May 4, 2012","format":false,"excerpt":"Grant to Improve Problem-Solving Skills for Deaf and Hard-of-Hearing Students MAY 1, 2012 By Michelle Cometa, RIT University News Services Story Highlights: * Students will participate in hands-on activities in the Toyota Production Systems Laboratory at RIT. * The modules will be part of foundation-level engineering courses required for students\u2026","rel":"","context":"In "General"","block_context":{"text":"General","link":"https:\/\/deafnetwork.com\/wordpress\/blog\/category\/deaf-news\/"},"img":{"alt_text":"","src":"","width":0,"height":0},"classes":[]},{"id":41547,"url":"https:\/\/deafnetwork.com\/wordpress\/blog\/2021\/01\/21\/survey-telehealth-for-deaf-people-about-access\/","url_meta":{"origin":33300,"position":3},"title":"SURVEY: Telehealth for deaf people about ACCESS","author":"Grant Laird Jr","date":"January 21, 2021","format":false,"excerpt":"Telehealth for deaf people about ACCESS Hello! I\u2019m Ashley, I'm a student at RIT\/NTID and work under the Deaf Health Lab at the NTID Research Center on Culture and Language as a research assistant. My research team has a study about telehealth experiences and\/or opinions. Any person who identifies as\u2026","rel":"","context":"In "General"","block_context":{"text":"General","link":"https:\/\/deafnetwork.com\/wordpress\/blog\/category\/deaf-news\/"},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/deafnetwork.com\/wordpress\/wp-content\/uploads\/2021\/01\/telehealthnoquestionmarkjpg.png?resize=350%2C200","width":350,"height":200},"classes":[]},{"id":30746,"url":"https:\/\/deafnetwork.com\/wordpress\/blog\/2015\/05\/14\/dhh-youth-encouraged-to-experience-ritntid-technology-camps\/","url_meta":{"origin":33300,"position":4},"title":"D\/HH youth encouraged to experience RIT\/NTID technology camps","author":"Grant Laird Jr","date":"May 14, 2015","format":false,"excerpt":"Release Date: May 12, 2015 Contact: Vienna McGrain 585-475-4952 or vnccom@rit.edu Twitter: @viennamcgrain Deaf and hard-of-hearing youth encouraged to experience RIT\/NTID technology camps Science, technology, engineering and math will be explored during the weeklong session in July Deaf and hard-of-hearing girls and boys who are interested in science, technology, engineering\u2026","rel":"","context":"In "General"","block_context":{"text":"General","link":"https:\/\/deafnetwork.com\/wordpress\/blog\/category\/deaf-news\/"},"img":{"alt_text":"","src":"","width":0,"height":0},"classes":[]},{"id":32527,"url":"https:\/\/deafnetwork.com\/wordpress\/blog\/2015\/12\/17\/utrgv-seeks-input-from-deaf-community-brownsville-texas\/","url_meta":{"origin":33300,"position":5},"title":"UTRGV seeks input from deaf community – Brownsville, Texas","author":"Grant Laird Jr","date":"December 17, 2015","format":false,"excerpt":"UTRGV seeks input from deaf community December 9, 2015 BY DANYA PEREZ-HERNANDEZ - STAFF WRITER EDINBURG\u2014 For people deaf or hard of hearing, important tasks like preventative health screenings might be more tedious than usual. 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